Contributions
1,658 recent contributions in Hansard
HANSARDData Protection and Digital Information (No. 2) Bill (Second sitting)Q Right. Is it a requirement of the Bill that the research should have the approval of the relevant ethics committee? Jonathan Sellors : I do not think that it is a requirement of…10 May 2023HANSARDData Protection and Digital Information (No. 2) Bill (Second sitting)Q I agree with you. Sorry, I did not quite hear what you said—approval by whom? Jonathan Sellors : Approval by the relevant ethics committee.10 May 2023HANSARDData Protection and Digital Information (No. 2) Bill (Second sitting)Q So it has to be de-identified. We will return to that. But you do not see any other risks? Jonathan Sellors : Let me put it this way: poor-quality research, undertaken in an…10 May 2023HANSARDData Protection and Digital Information (No. 2) Bill (Second sitting)Q I know that you are very supportive of the Bill, but I wonder whether you see risks to patients and service users from facilitating a greater sharing of health and care data.…10 May 2023HANSARDData Protection and Digital Information (No. 2) Bill (Second sitting)Q Let me ask a follow-up question. I recognise that your intent in research is ethical—there are ethics committees involved. Given the definition of scientific research to be…10 May 2023HANSARDData Protection and Digital Information (No. 2) Bill (Second sitting)Currently. Jonathan Sellors : Currently—I accept that. Tom Schumacher: I would say a couple of things. It is important to know that the Bill preserves the full array of safeguards…10 May 2023HANSARDData Protection and Digital Information (No. 2) Bill (Second sitting)Q We heard from some witnesses today that greater ease of access to data will increase competition for those such as Google and Meta that have large amounts of data as it is. What…10 May 2023HANSARDData Protection and Digital Information (No. 2) Bill (Second sitting)Q Yes, I certainly agree with that—it is almost impossible—but I do think it is possible to re-identify data without spending millions of pounds, especially when it is correlated…10 May 2023HANSARDData Protection and Digital Information (No. 2) Bill (Second sitting)Q Yes, but people might not want their data to be used for that. They would have no control over it in this case. Jonathan Sellors: There has to be some element of scientific…10 May 2023HANSARDData Protection and Digital Information (No. 2) Bill (Second sitting)Q On the point of de-identifying or pseudonymisation, do you recognise that there have been examples of pseudonymised data that has been re-identified, and that, particularly…10 May 2023HANSARDData Protection and Digital Information (No. 2) Bill (First sitting)I am a proud member of two trade unions.10 May 2023HANSARDData Protection and Digital Information (No. 2) Bill (Second sitting)Q In terms of data sharing, should there be provisions in the Bill to ensure that workers can give free and informed consent to the sharing of their data, or will the asymmetry of…10 May 2023HANSARDData Protection and Digital Information (No. 2) Bill (Second sitting)Q Have you identified any provisions to achieve that in the Bill as it stands? Andrew Pakes: We would like to see more. We are worried that the current legislation, because of…10 May 2023HANSARDData Protection and Digital Information (No. 2) Bill (Second sitting)Q But not all research, surely, because the definition of research is something that can “reasonably be described as scientific” research. You would see concerns, then, if data…10 May 2023HANSARDData Protection and Digital Information (No. 2) Bill (Second sitting)Q Thank you very much for your evidence so far. It is going to be informative about the use of digital ID in recruitment. You said earlier that it helps to separate away from…10 May 2023HANSARDData Protection and Digital Information (No. 2) Bill (Second sitting)Q Welcome to both of you. Apologies for my misuse of my own technology earlier. The Minister talked about the need for growth, which has been sadly lacking in our economy for the…10 May 2023HANSARDData Protection and Digital Information (No. 2) Bill (Second sitting)Q I think you implied that there was data that you would like to have access to but currently do not have access to. Can you elaborate on what data you do not have access to in…10 May 2023HANSARDData Protection and Digital Information (No. 2) Bill (First sitting)Q Thank you, Mr Hollobone. We have heard that the intent in the Bill is in part to reduce the burden on organisations from data protection. We heard you set out what some of those…10 May 2023HANSARDData Protection and Digital Information (No. 2) Bill (First sitting)Could I—10 May 2023HANSARDData Protection and Digital Information (No. 2) Bill (First sitting)Q Dr Tennison, could you give an example of the kind of abuse that you are most concerned about taking place if this Bill is passed unchanged, so that we can better understand…10 May 2023