Contributions
967 recent contributions in Hansard
HANSARD Batten Disease: Access to DrugsI congratulate my hon. Friend the Member for North East Somerset (Mr Rees-Mogg) on securing this important debate on what is a heartbreaking issue, as I am sure you will agree, Mr…16 Jul 2019HANSARD Batten Disease: Access to DrugsThank you, Mr Speaker. You have made my position even more difficult. I am very grateful for your advice. The advice I have been given by the legal team within the Department of…16 Jul 2019HANSARD Batten Disease: Access to DrugsThank you for clarifying that, Mr Speaker. I very much share the passion that I detect my hon. Friend the Member for North East Somerset feels about this issue, which I know is…16 Jul 2019HANSARD Batten Disease: Access to DrugsThank you, Mr Speaker. I am very grateful—16 Jul 2019HANSARD Batten Disease: Access to DrugsThank you, Mr Speaker. The legal position, as I understand it, is that NHS England and NHS Improvement have been in discussions with the manufacturer BioMarin for some time to try…16 Jul 2019HANSARD Batten Disease: Access to DrugsI take on board all the comments that you have made, Mr Speaker, and indeed that hon. Members have made. I need to go away and reflect on this. I would like to make some progress…16 Jul 2019HANSARD Batten Disease: Access to DrugsI know that the Secretary of State met the hon. Lady and other Members recently, and this is something that he cares about passionately. We are doing everything we can in the…16 Jul 2019HANSARD Batten Disease: Access to DrugsYes, I will come back and make that statement before the House rises for the summer recess, with the correct legal recommendations. The NICE review of its methods and processes…16 Jul 2019HANSARD Batten Disease: Access to DrugsMy understanding is that if the manufacturer of this vital drug gets around the table with NICE and suggests a price within a reasonable scale, NICE would be very open to…16 Jul 2019HANSARD Batten Disease: Access to DrugsNICE now operates two separate programmes for the assessment of new medicines: first, a technology appraisal programme through which NICE assesses the vast majority of new…16 Jul 2019HANSARD Batten Disease: Access to DrugsWe are in a difficult position because the advice that has been forthcoming from the Department of Health and Social Care is not the same as the advice being given by the…16 Jul 2019HANSARD Batten Disease: Access to DrugsI do not think it would contravene any legal recommendations if I were to say that if the manufacturer, NHS England and NICE were to get around a table and agree a satisfactory…16 Jul 2019HANSARD Batten Disease: Access to DrugsI give way.16 Jul 2019HANSARD Batten Disease: Access to DrugsThat is a really good question, and I think that is one reason why NICE is looking again at its systems. It must be possible, because around 80% of new drugs are recommended for…16 Jul 2019HANSARD Batten Disease: Access to DrugsIn a moment. The advice that I have been given is that I have to be very careful on the legal procedure because of the fact that it is not a legal procedure between individuals…16 Jul 2019HANSARD Children’s Palliative CareThe hon. Lady makes an excellent point with her customary insight. I care deeply about this matter, totally understand what she says and very much recognise the point that she is…01 Jul 2019HANSARD Children’s Palliative CareI congratulate my hon. Friend the Member for Sleaford and North Hykeham (Dr Johnson) on securing a debate on this important matter. I particularly thank her for the fantastic work…01 Jul 2019HANSARD Children’s Palliative CareI thank my hon. Friend for that. She must take some of the credit, because it is her work, along with that of her co-chair of the all-party group, that has helped to secure these…01 Jul 2019HANSARD Children’s Palliative CareThe hon. Lady has powerfully put her sentiments on the record, and I absolutely with them. In parallel with the announcements that NHS England has made on the much-welcomed…01 Jul 2019HANSARD Children’s Palliative CareAs I said at the beginning, my hon. Friend is nothing if not utterly tenacious and passionate in her pursuit of this. I will talk about the short breaks now. She is absolutely…01 Jul 2019