Support for children and young people with life-shortening conditions
MPs will debate Support for children and young people with life-shortening conditions in Westminster Hall on Tuesday 7 June 2016 at 9.30 am. Stuart Andrew MP will be lead the debate. This House of Commons Library debate pack contains a summary of the issues, relevant reports, press and parliamentary coverage, and links to further reading.
It is estimated that more than 40,000 children (0–19 years) in England have a life-limiting or life-threatening condition. The charity Together for Short Lives has called for a more integrated commissioning approach from CCGs, NHS England and local authorities. Because hospices generally receive funding from a variety of sources, including charitable donations, provision can vary. In 2015, a survey carried out by Together for Short Lives and Hospice UK found that statutory funding for children's and adult hospices was patchy and inconsistent.