Access to medicines for people with cystic fibrosis and other rare diseases
This debate pack has been compiled ahead of the debate on Access to medicines for people with cystic fibrosis and other rare diseases, to be held on Tuesday 8 December 2015 at 9.30am in Westminster Hall. The Member in charge of the debate is Ian Austin.
The Cystic Fibrosis Trust’s “Stopping the Clock campaign” aims to ensure that as many people as possible will have access to “precision medicines”, which treat the underlying genetic causes of cystic fibrosis, not just the symptoms.
Prior to the Westminster Hall debate, the Cystic Fibrosis Trust and Parliament’s Digital Outreach Service have organised a digital debate on Twitter. The debate starts at 5pm on Monday 7 December and you can take part in this discussion using the hashtag #CFdebate.
The idea for digital debates linked to debates in Westminster Hall came from the Speaker’s Commission on Digital Democracy.