ORDERPAPER
TodayBrowseYour MPCalendar
Order Paper
Data sources & licencesContact us

Contains Parliamentary information licensed under the Open Parliament Licence v3.0. Contains public sector information licensed under the Open Government Licence v3.0. © Parliamentary copyright. © Crown copyright.

BrowsePolicy Papers
POLICYWithdrawnPolicy paper · gov.uk

England Rare Diseases Action Plan 2026

The fifth action plan shows how the Department of Health and Social Care and delivery partners are implementing the UK Rare Diseases Framework in England.

Last fetched 17 May 2026 · gov.uk
Documents
England Rare Diseases Action Plan 2026: main reportEngland Rare Diseases Action Plan 2026, annex A: actions and statusEngland Rare Diseases Action Plan 2026: simplified version
At a glance
TypePolicy paper
First published27 Feb 2026
Last updated14 Apr 2026
Organisations
Department of Health and Social Care
Topics
National Health ServiceHealth conditionsHealth improvementResearch and innovation in health and social care
Source
Open on gov.uk
Other from Department of Health and Social CareSee all →
CONSULT.
Using dual energy x-ray absorptiometry (DEXA) scans for non-medical purposes as a justified practice
CONSULT.
Applying the new NPM to advertising and promotions restrictions
CONSULT.
Reforming the General Medical Council legislative framework
CONSULT.
Strengthening the regulation of commercial sunbeds in England
PETITION
Appoint a Maternity Commissioner to improve maternity care for mums and babies
PETITION
Review the evidence and fund the addition of SMA to the Newborn Screening Test
Related policy papers
POLICY
Farming Roadmap 2050
POLICY
Government response to the Farming Profitability Review
POLICY
Ockenden review into maternity services at Nottingham University Hospitals NHS Trust: final report
POLICY
Summary of tax update 2026: simplification, modernisation and fairness