BrowsePetitions#755954
PETITIONRejectedPetition · petition.parliament.uk

Add screening for SMA type 1 to routine newborn blood spot test at day 5 of age

Add screening for SMA type 1 to routine Newborn blood spot test in England to promote early access to treatment to avoid severe disability or death.

Last fetched 03 May 2026 · petition.parliament.uk
Signatures
10
signatures
Government response threshold (10,000) · 10/10,000
Debate threshold (100,000) · 10/100,000
Background
For Screening for SMA Type 1 to be added to the newborn screening programme in England to be completed on day 5-8 days of age (Already added to Scotlands screening programme). Early detection and treatment is essential to avoid severe disability and death - The time in which this condition is not detected has direct and severe consequences to long term outcomes and prognosis.