Review the evidence and fund the addition of SMA to the Newborn Screening Test
We urge the UK Government to fund and help fast-track the process to add SMA to the NHS newborn heel-prick test. SMA is a rare genetic condition with devastating consequences if not treated early. Every baby should be screened at birth to allow early diagnosis and access to life-changing treatment.
Signatures
149,472
signatures
Government response threshold (10,000) · 10,000/10,000 · reached
Debate threshold (100,000) · 100,000/100,000 · reached
- 03 MAR 2026Government respondedDepartment of Health and Social CareGovernment reply
The NHS is planning an in-service evaluation offering SMA screening to newborn babies in England. This will inform a decision on whether to extend the NHS newborn blood spot screening programme.
Read full response - 13 FEB 2026100,000 signatures reachedEligible to be considered for debate
- 12 FEB 202610,000 signatures reachedEligible for a government response
- 09 FEB 2026Petition opened for signaturesCreated by Jesy Nelson
Background
SMA was one of the leading genetic causes of infant mortality: up to 90% of untreated babies either died before age two or required permanent ventilation. It is now treatable, but treatment is most effective before symptoms appear. Early diagnosis can give babies the chance at a life without severe disability. Without screening, many babies are diagnosed too late. The damage already caused to their mobility, breathing and swallowing cannot be reversed. Scotland has committed to piloting SMA newborn screening this year. All babies should have the same chance. No child should suffer avoidable harm.