Introduce an NHS data opt-out & require a consultation for system expansions
Introduce a clear national opt-out for NHS data processed in the Federated Data Platform (FDP) and National Data Integration Tenant (NDIT) and require a full public consultation before any further expansion of these systems.
Signatures
29,245
signatures
Government response threshold (10,000) · 10,000/10,000 · reached
Debate threshold (100,000) · 29,245/100,000
- 26 FEB 2026Government respondedDepartment of Health and Social CareGovernment reply
The National Data Opt-Out does not apply to the NDIT or FDP as data use supports direct care, is legally required or is anonymised. National public engagement is shaping changes to the opt-out system.
Read full response - 06 FEB 202610,000 signatures reachedEligible for a government response
- 14 JAN 2026Petition opened for signaturesCreated by Gemma Smith
Background
The NHS is planning to move from multiple, separate systems to a new national data architecture. Technical documents show national processing of identifiable data, while public explanations may describe only anonymous or aggregate use. As these systems are still being rolled out, we believe the public should have transparency, a clear opt-out and the chance to respond before further expansion.