Improve services for those living with Postural Tachycardia Syndrome
Calling on Parliament to urge the Government to instruct the NHS to form specialist services, guidelines, training resources and a clinical pathway for the diagnosis and treatment of patients with symptoms of PoTS and related autonomic nervous system dysfunction (dysautonomia) in every region.
Signatures
8
signatures
Government response threshold (10,000) · 8/10,000
Debate threshold (100,000) · 8/100,000
- 28 FEB 2025Petition rejectedduplicate
You may wish to sign the following petition, which calls for similar action: Postural Tachycardia Syndrome: fund training and facilities https://petition.parliament.uk/petitions/706884
- 07 JAN 2025Petition created
Background
PoTS is a common, long term, debilitating health condition which mostly affects young people. 90% will improve with access to treatment, but due to the lack of recognition of symptoms and access to healthcare, the average time from onset to diagnosis is 7 years. Many patients throughout the UK currently have very restricted or no access to specialist NHS healthcare as many regions have no specialist services, and there are no clinical care pathways in the UK, and no UK medical guidelines.