PETITIONOpenPetition · petition.parliament.uk
Fund NHS access to Tofersen for all people with SOD-1 Motor Neuron Disease
We call on the Government to fund universal, NHS access to the life-extending medication Tofersen for all people who have been diagnosed with SOD-1 Motor Neuron Disease.
Last fetched 03 May 2026 · petition.parliament.uk
Signatures
54
signatures
Government response threshold (10,000) · 54/10,000
Debate threshold (100,000) · 54/100,000
Background
We are asking for the Government to make Tofersen available to all who would benefit from treatment. The medication has been proven to extend lifespan, and in some cases stop progression of symptoms. We believe the current situation is unethical.