Consultation: Proposed changes to the infected blood compensation scheme
The Government is consulting on proposed changes to the infected blood compensation scheme on the basis of recommendations made in the Infected Blood Inquiry Additional Report. Responses to this consultation will support the Government to implement any changes to the Scheme through legislation.
In line with government consultation principles, this consultation is open to the general public. We particularly welcome responses to this consultation from the infected blood community and any people or organisations with an interest in the Infected Blood Inquiry.
Responding to the consultationThis consultation is hosted on an online survey platform called SmartSurvey. To respond to the consultation, please use the following weblink:
We are committed to making sure that anyone who wants to respond to the consultation is able to do so. If, for any reason, you are unable to complete the consultation using the online platform, please contact ibconsultation@cabinetoffice.gov.uk to request a Word Document version of the response template.
Once complete, your response should be returned to the same email address. If you would like to send in your response via post, please mark your correspondence ‘Proposed changes to the Infected Blood Compensation Scheme’ and send it to:
Infected Blood Inquiry Response Team
Cabinet Office
Third Floor
1 Horse Guards Road
SW1A 2HQ
All responses must be received by the Cabinet Office before the closing date. We will be unable to consider responses received after this deadline.
We recommend that individual organisations provide a single consolidated response.
Summary videosThe consultation is split into seven sections. The below videos summarise the topic covered in each of the sections and the questions that the consultation asks.
Section 1: The Special Category Mechanism and its EquivalentsSection 1: The Special Category Mechanism and its Equivalents
Section 2: Severe Psychological HarmSection 2: Severe Psychological Harm
Section 3: Recognition of Harm caused by Interferon TreatmentSection 3: Recognition of Harm caused by Interferon Treatment
Section 4: To follow Section 5: Evidence Requirements for Exceptional LossSection 5: Evidence Requirements for Exceptional Loss
Section 6: Supplementary Awards for Affected PeopleSection 6: Supplementary Awards for Affected People
Section 7: Unethical Research Privacy and ConfidentialityWe recognise that the experiences of people in the infected blood community are both private and sensitive, and that they have not always been treated with dignity and respect. Because of that, some people may feel concerned about how their personal information will be handled.
Any information shared as part of this consultation will remain private and confidential. All personal information will be handled in accordance with data protection legislation, including the General Data Protection Regulation and Data Protection Act 2018. The Privacy Notice for this consultation provides further detail on how data will be handled.
No one responding to this consultation is obliged to share personal information about their health or circumstances unless they wish to. Respondents may choose to share some but not all of their experiences, or to remain completely anonymous if they prefer.
EnquiriesPlease send any enquiries relating to this consultation to:
ibconsultation@cabinetoffice.gov.uk
Government response to this consultationThe Government will publish a response to this consultation on gov.uk within 12 weeks of its closing. If, for any reason, it is not possible to publish a response within this timeframe, an explanation for the delay will be provided on this consultation page on gov.uk.